Rare diseases in the media

Report April-June 2014, Observatory for Rare Diseases FEDER (OBSER)

  • Josep Solves Almela Universidad Cardenal Herrera
  • Antonio Miguel Bañón Hernández Universidad de Almería
Keywords: rare diseases, media, Spain, 2014


This report presents the analysis of how Spanish mass media dealt with the so-called rare deseases during the months of April, May and June of 2014. The report has the same general objective of the first one for the previous three months: understand how rare diseases are presented in the Spanish media and, correspondingly, how that media representation evolves. In this report, the data of the first trimester is compared to the second one.


Download data is not yet available.

Author Biographies

Josep Solves Almela, Universidad Cardenal Herrera

Josep Solves Almela  holds a PhD in Communication Sciences from the Autonomous University of Barcelona (1999) and Bachelor of Information Science from the Polytechnic University of Valencia (1991). He is lecturer at the Faculty of Social Sciences and Communication at the University CEU Cardenal Herrera, where he teaches in the area of Communication Theory and Sociology. In 2005 he established the Research Group on Disability and Communication (GIDYC) at CEU Cardenal Herrera University where he has led research projects on the Spanish media coverage of the Paralympic Games and the study on the media coverage of disability in Valencia. He coordinated the book Tratamiento de los Juegos Paralímpicos de 2008 en los medios españoles (Madrid: CERMI, 2012).

Antonio Miguel Bañón Hernández, Universidad de Almería

Miguel Antonio Hernández Bañón holds a PhD in Hispanic Philology from the University of Murcia and currently teaches at the University of Almería. Directs the research group ECCO (Critical Studies in Communication). It is scientific coordinator of the Center for Research in Communication and Society (CySOC). And technical director of the Observatory on Rare Diseases (OBSER). He has authored more than one hundred works on two preferred areas of research: the analysis of oral discourse and critical discourse analysis.


Bañón, A.M. y Fornieles, J. (2011). Communication and Rare Diseases: Contextualisation. En Bañón, A. M., Fornieles, J., Solves, J. A. y Rius, I. (coords.). Communication Strategies and Challenges for Rare Diseases: Medical Research as a Referent. CIBERER.

Bañón, A. M. y Urán, I. (2011). La representación discursiva de las enfermedades raras y de los afectados: los nombres y las cifras. En Bañón, A. M., Fornieles, J., Solves, J. A. y Rius, I. (coords.). Desafíos y estrategias comunicativas de las enfermedades raras: la investigación médica como referente (pp. 151-164). CIBERER.

Bañón, A. M. y Requena, S. (2014). La representación de las enfermedades poco frecuentes en el discurso periodístico español. Propuestas para el análisis. Sociocultural Pragmatics, 2(2), pp. 1-42.

Catalano, T. y Waugh, L.R. (2013). The ideologies behind newspaper crime reports of Latinos and Wall Street/CEOs: A critical analysis of metonymy in text and image. Discourse Studies, 10(4), pp. 406-426. http://dx.doi.org/10.1080/17405904.2013.813774

Cruz, O. y Requena, S. (2013). El Día de las Enfermedades Raras en las noticias televisivas. Análisis crítico de su representación audiovisual. Discurso & Sociedad, 7(1), pp. 200-223.

Delgado, R. (1993). On telling stories in school: A reply to Farber and Sherry. Vanderbilt Law Review, 46, pp. 665-676.

Erdmans, M. P. (1999). Portraits of emigration: Sour mild and honey in the promised land. Sociological Inquiry, 69(3), pp. 337-363. http://dx.doi.org/10.3102/0091732x022001195

Espino, M. M. (2008). Master narratives and counter-narratives: an analysis of Mexican

American life stories of oppression and resistance along journeys to the doctorate. Tesis doctoral. University of Arizona. Recuperado de:

http://arizona.openrepository.com/arizona/bitstream/10150/195733/1/azu_etd_2711_sip1_m.pdf (15-05-2015).

Kress, G. R. y van Leeuwen, T. (2006). Reading Images: The Grammar of Graphic Design (2nd ed.). London: Routledge.

Tate IV, W. F. (1997). Critical race theory and education: History, theory, and implications. Review of Research in Education, 23, pp. 191-243. http://dx.doi.org/10.3102/0091732x022001195

Yosso, T. J. (2006). Critical race counterstories along the Chicana/Chicano educational pipeline. New York: Routledge.

How to Cite
Solves Almela, J., & Bañón Hernández, A. (2015). Rare diseases in the media. Texts in Process, 1(1), 90-236. https://doi.org/10.17710/tep.2015.1.1.5sol